Update from Doc Appointment

Received a call from the doctor and she says my ultrasound looks good, no sign of cyst. which is a relief.

All I’ve been told is you can go on Lupron. and here’s a number to a fertility Doc I recommend. I just don’t think Lupron is for me. I don’t know what to do.

I’ve felt at times that I can talk to people who have no idea what this disease does to you and they can say they understand but the truth is they have no idea.

Here’s something one of my Endo sister posted and man how it is oh so true. Feels like a never-ending cycle.

“Hi. . . My Name is Endometriosis, and I’m an invisible chronic illness. I am now velcroed to you for life. Others around you can’t see me or hear me, but your body feels me. I can attack you anywhere and anyway I please. I can cause severe pain or, if I’m in a good mood, I can just cause you digestive problems and fatigue.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. I can make you feel anxious or depressed, and I can make you catch every cold and sniffle that comes around. If you have something planned, or are looking forward to a great day, I can take that away, too.

I hear you’re going to see a doctor who can get rid of me. I’m rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, hormones, told you are suffering from anxiety or depression, massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel. Some of them will say things like “Oh, you are just having a bad day” or “Well, remember, you can’t do the things you used to do 20 YEARS ago”, not hearing that you said 20 MONTHS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a “normal” person, and can’t remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret but I guess you already found out). . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Endometriosis.”


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